SAVE THE DATE
JUNE 8, 2024

Los Angeles, California

The Rare Impact Awards® are Headed to the West Coast!

When: June 8, 2024
Where: Universal Studios in Los Angeles, CA
Why: Gather to celebrate and honor the individuals and organizations driving progress and pioneering advancements in rare disease.

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Thank You for Joining Us in 2023!

The 2023 Rare Impact Awards, held on May 4th 2023 at the National Portrait Gallery in Washington, DC, featured a 40th Anniversary celebration of the passage of the Orphan Drug Act as well as honoring NORD’s many achievements over the past 40 years in service of the rare disease community. This very special evening honored individuals and organizations who are doing remarkable work on behalf of the rare disease community.

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2023 RARE IMPACT AWARD HONOREES


Abbey S. Meyers, PhD

Lifetime Achievement Award


Alliance to Cure Cavernous Malformation

Abbey S. Meyers Leadership Award


Ada Hamosh, MD, MPH, FACMG

Rare Impact Award


Jaime Herrera Beutler

Rare Impact Award


Shannon Killebrew

Rare Impact Award


Phillip Maderia

Rare Impact Award


Bernie Williams

Rare Impact Award

2023 INDUSTRY INNOVATION AWARD HONOREES

bluebird bio for Skysona®

CSL Behring and uniQure for Hemgenix®

Mallinckrodt Pharmaceuticals for Terlivaz®

Marinus Pharmaceuticals for Ztalmy®

Novartis for Vijoice®

Sanofi for Xenpozyme™

2023 Sponsors

Diamond

Gold

Silver

Bronze

Table Sponsor

Additional Supporters

Media Partners

© NORD. NORD, Rare Impact Awards are registered trademarks of The National Organization for Rare Disorders. | All Rights Reserved.