NORD's 40th Anniversary Celebration
and the Rare Impact Awards®

May 4, 2023 | Washington, DC

NORD’s 40th Anniversary Celebration and the Rare Impact Awards®

In recognition of this milestone, the 2023 Rare Impact Awards will feature a 40th Anniversary Celebration and will be hosted in our nation’s capital, the place where rare disease patients and families testified in front of Congress to pass the Orphan Drug Act in 1983. This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will take place in the National Portrait Gallery on May 4, 2023.


Marshall Summar, MD

Lifetime Achievement Award

Sickle Cell Disease Association of America, Inc

Abbey S Meyers Leadership Award

Peter Hotez, MD, PhD

Public Health Leadership Award

Maria Elena Bottazzi, PhD

Public Health Leadership Award

Congressman G. K. Butterfield (D) North Carolina

Rare Impact Award

Delegate Kathleen Murphy (D) Virginia 34th District

Rare Impact Award

Lesley Bennett

Rare Impact Award

Bo Bigelow

Rare Impact Award

Melinda Burnworth, PharmD, BCPS

Rare Impact Award

Richard Horgan

Rare Impact Award

Tammy Jones

Rare Impact Award

Jack Timperley

Rare Impact Award

Kids Caring for Kids Youth Advisory Board

Rare Impact Award

Michail Lionakis, MD ScD

Rare Impact Award

Nora Wong, PhD

Rare Impact Award


Industry Innovation Award

BridgeBio Pharma for Nulibry™

Kedrion Biopharma for Ryplazim®

PharmaEssentia Corporation for Besremi®

Enzyvant for Rethymic®

Bristol Myers Squibb & 2seventy bio for Abecma®

On Target Laboratories Inc. for Cytalux™

Apellis for Empaveli™

2023 Sponsors



Supporters & Exhibitors