NORD's 40th Anniversary Celebration
and the Rare Impact Awards®

May 4, 2023 | Washington, DC

NORD’s 40th Anniversary Celebration and the Rare Impact Awards®

In recognition of this milestone, the 2023 Rare Impact Awards will feature a 40th Anniversary Celebration and will be hosted in our nation’s capital, the place where rare disease patients and families testified in front of Congress to pass the Orphan Drug Act in 1983. This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will take place at the National Portrait Gallery on May 4, 2023.

Meet Our Emcee for the Evening

We’re pleased announce that Emmy Award-winning journalist and NBC News Chief White House correspondent, Peter Alexander, will be joining us as the host of the 2023 Rare Impact Awards and NORD’s 40th Anniversary celebration.

Peter Alexander has a personal connection to the rare community. His sister, Rebecca, has Usher syndrome, type III, a rare genetic disorder that is the leading genetic cause of combined deafness and blindness in the US and around the world. His reports on the impact of Rebecca’s rare condition and those who love her speak to the experiences of millions of Americans living with rare disease.

Musical guest announced!

We’re so pleased to welcome CeeCee Castro, a childhood cancer survivor of acute lymphocytic leukemia, to share her story and move you with her remarkable musical talent during the Rare Impact Awards.

Catherine “CeeCee” Castro is a singer-songwriter influenced by Mariah Carey, Whitney Houston and Selena, whose style is a unique blend of R&B and Soul with Latin influences. She has performed the national anthem at the famous Madison Square Garden, sung for Coca-Cola Latin America, and worked with Grammy Award-winning producers and artists. Lately, she has been performing with her band across the New York Tribeca area promoting her song “Sin Ti.”


Abbey S. Meyers, PhD

Lifetime Achievement Award

Alliance to Cure Cavernous Malformation

Abbey S. Meyers Leadership Award

Ada Hamosh, MD, MPH, FACMG

Rare Impact Award

Jaime Herrera Beutler

Rare Impact Award

Shannon Killebrew

Rare Impact Award

Phillip Maderia

Rare Impact Award

Bernie Williams

Rare Impact Award


bluebird bio for Skysona®

CSL Behring for Hemgenix®

Mallinckrodt Pharmaceuticals for Terlivaz®

Marinus Pharmaceuticals for Ztalmy®

Novartis for Vijoice®

Sanofi for Xenpozyme™

2023 Sponsors





Supporters & Exhibitors

Media Partners

Table Sponsor