Gallery

View Photos from the 2024 Rare Impact Awards

Presented on Sound Stage 15 at Universal Studios Hollywood, California

Photos by John Halpern Photography

Host Peter Alexander of NBC News and NORD CEO Pamela Gavin with NORD mascot NORDY the zebra on the orange carpetHost Peter Alexander of NBC News and NORD CEO Pamela Gavin with NORD mascot NORDY the zebra on the orange carpet
NORD CEO Pamela Gavin and host Peter Alexander in front of the wall of 2024 Rare Impact Award winnersNORD CEO Pamela Gavin and host Peter Alexander in front of the wall of 2024 Rare Impact Award winners
Kids and Teens with rare diseases on stage with host Peter AlexanderKids and Teens with rare diseases on stage with host Peter Alexander
NORD CEO Pamela K. Gavin on stage at the Rare Impact AwardsNORD CEO Pamela K. Gavin on stage at the Rare Impact Awards
Host Peter Alexander introducing the Rare Impact AwardsHost Peter Alexander introducing the Rare Impact Awards
Award winner Abigail Villarreal performs ballet folklórico in a dress with Rare Disease Day colorsAward winner Abigail Villarreal performs ballet folklórico in a dress with Rare Disease Day colors
Photo of the Rare Impact Awards themselvesPhoto of the Rare Impact Awards themselves
Guests posing with Minions Kevin and Stuart on the NORD orange carpetGuests posing with Minions Kevin and Stuart on the NORD orange carpet
Rodney Dickson of Takeda speaking with host Peter AlexanderRodney Dickson of Takeda speaking with host Peter Alexander
During the gala at the 2024 Rare Impact AwardsDuring the gala at the 2024 Rare Impact Awards
Host Peter Alexander visits the staff and patient presenters from Chiesi Global Rare Diseases at their tableHost Peter Alexander visits the staff and patient presenters from Chiesi Global Rare Diseases at their table
Host Peter Alexander of NBC News on stage at the NORD Rare Impact AwardsHost Peter Alexander of NBC News on stage at the NORD Rare Impact Awards
Jana Monaco of Virginia accepting her Community Champion Rare Impact Award via videoJana Monaco of Virginia accepting her Community Champion Rare Impact Award via video
Dr. Jim Cassidy of SpringWorks Therapeutics accepting their Industry Innovation AwardDr. Jim Cassidy of SpringWorks Therapeutics accepting their Industry Innovation Award
Desmoid tumor patient presenter Jon Fields and Dr. Jim Cassidy, CMO of SpringWorks Therapeutics, with host Peter Alexander and NORD CEO Pamela GavinDesmoid tumor patient presenter Jon Fields and Dr. Jim Cassidy, CMO of SpringWorks Therapeutics, with host Peter Alexander and NORD CEO Pamela Gavin
Abigail Villarreal of San Antonio accepting her Youth Champion Rare Impact AwardAbigail Villarreal of San Antonio accepting her Youth Champion Rare Impact Award
Youth Champion Award winner Abigail Villarreal with host Peter Alexander and NORD CEO Pamela GavinYouth Champion Award winner Abigail Villarreal with host Peter Alexander and NORD CEO Pamela Gavin
IgA nephropathy patient presenter Raiza Noelia presenting the award to Travere TherapeuticsIgA nephropathy patient presenter Raiza Noelia presenting the award to Travere Therapeutics
Travere Therapeutics CEO Eric Dube with patient presenter Raiza Noelia, host Peter Alexander and NORD CEO Pamela GavinTravere Therapeutics CEO Eric Dube with patient presenter Raiza Noelia, host Peter Alexander and NORD CEO Pamela Gavin
Rigo Garcia of the Hemophilia Foundation of Southern California presenting the Industry Innovation award to BioMarinRigo Garcia of the Hemophilia Foundation of Southern California presenting the Industry Innovation award to BioMarin
Jess Klass of BioMarin accepting their award for Industry InnovationJess Klass of BioMarin accepting their award for Industry Innovation
Host Peter Alexander, Rigo Garcia of the Hemophilia Foundation of Southern California, Jess Klass of BioMarin, and NORD CEO Pamela GavinHost Peter Alexander, Rigo Garcia of the Hemophilia Foundation of Southern California, Jess Klass of BioMarin, and NORD CEO Pamela Gavin
Dr. Richard Chang of Children’s Hospital of Orange County Metabolic Lab accepting Dr. Jose Abdenur’s Rare Impact Award on his behalfDr. Richard Chang of Children’s Hospital of Orange County Metabolic Lab accepting Dr. Jose Abdenur’s Rare Impact Award on his behalf
Dr. Richard Chang of Children’s Hospital of Orange County Metabolic Lab, standing in for award winner Dr. Jose Abdenur, with host Peter Alexander and NORD CEO Pamela GavinDr. Richard Chang of Children’s Hospital of Orange County Metabolic Lab, standing in for award winner Dr. Jose Abdenur, with host Peter Alexander and NORD CEO Pamela Gavin
U.S. Representative Gus Bilirakis of Florida accepting his Policy Changemaker award via videoU.S. Representative Gus Bilirakis of Florida accepting his Policy Changemaker award via video
Lorah Perlee of Regeneron with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela GavinLorah Perlee of Regeneron with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela Gavin
Alpha-mannosidosis patient presenters Sarah Forsman and Carolyn Paisley-Dew presenting the award to Chiesi Global Rare DiseasesAlpha-mannosidosis patient presenters Sarah Forsman and Carolyn Paisley-Dew presenting the award to Chiesi Global Rare Diseases
Chiesi Global Rare Diseases CEO Giacomo Chiesi accepting their Industry Innovation AwardChiesi Global Rare Diseases CEO Giacomo Chiesi accepting their Industry Innovation Award
Host Peter Alexander, Chiesi Global Rare Diseases CEO Giacomo Chiesi, patient presenters Sarah Forsman and Carolyn Paisley-Dew, and NORD CEO Pamela GavinHost Peter Alexander, Chiesi Global Rare Diseases CEO Giacomo Chiesi, patient presenters Sarah Forsman and Carolyn Paisley-Dew, and NORD CEO Pamela Gavin
Former NORD CEO Peter L. Saltonstall honored for his legacy of service to NORDFormer NORD CEO Peter L. Saltonstall honored for his legacy of service to NORD
Former NORD CEO Peter L. Saltonstall being honored on stage with a medal, video, and bobbleheadFormer NORD CEO Peter L. Saltonstall being honored on stage with a medal, video, and bobblehead
Rigo Garcia of the Hemophilia Foundation of Southern California with host Peter Alexander and NORD CEO Pamela GavinRigo Garcia of the Hemophilia Foundation of Southern California with host Peter Alexander and NORD CEO Pamela Gavin
Jérôme de Larosière of Ipsen Biopharmaceuticals accepting their award for Industry InnovationJérôme de Larosière of Ipsen Biopharmaceuticals accepting their award for Industry Innovation
Jérôme de Larosière of Ipsen Biopharmaceuticals with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela GavinJérôme de Larosière of Ipsen Biopharmaceuticals with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela Gavin
Irfan Patel of Delaware accepting his Community Champion Rare Impact AwardIrfan Patel of Delaware accepting his Community Champion Rare Impact Award
Award winner Irfan Patel of Delaware with host Peter Alexander and NORD CEO Pamela GavinAward winner Irfan Patel of Delaware with host Peter Alexander and NORD CEO Pamela Gavin
Tracey Meeks of Vertex Pharmaceuticals accepting their Industry Innovation AwardTracey Meeks of Vertex Pharmaceuticals accepting their Industry Innovation Award
Tracey Meeks of Vertex Pharmaceuticals with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela GavinTracey Meeks of Vertex Pharmaceuticals with host Peter Alexander, NORD’s Patrick Collins and CEO Pamela Gavin
Darlene Shelton, founder of Danny’s Dose, accepting her Rare Impact AwardDarlene Shelton, founder of Danny’s Dose, accepting her Rare Impact Award
Award winner Darlene Shelton of Danny’s Dose with host Peter Alexander and NORD CEO Pamela GavinAward winner Darlene Shelton of Danny’s Dose with host Peter Alexander and NORD CEO Pamela Gavin
Activated PI3K delta syndrome patient presenter Tyler Burgents presents Pharming’s awardActivated PI3K delta syndrome patient presenter Tyler Burgents presents Pharming’s award
Host Peter Alexander, Stephen Toor of Pharming, patient presenter Tyler Burgents, and NORD CEO Pamela GavinHost Peter Alexander, Stephen Toor of Pharming, patient presenter Tyler Burgents, and NORD CEO Pamela Gavin
Friedreich’s Ataxia patient Chris Meyer presents Biogen’s Industry Innovation AwardFriedreich’s Ataxia patient Chris Meyer presents Biogen’s Industry Innovation Award
Rachid Izzar of Biogen accepting their awardRachid Izzar of Biogen accepting their award
Host Peter Alexander, Rachid Izzar of Biogen, patient presenter Chris Meyer, and NORD CEO Pamela GavinHost Peter Alexander, Rachid Izzar of Biogen, patient presenter Chris Meyer, and NORD CEO Pamela Gavin
Past CEO of EURORDIS – Rare Diseases Europe, Yann Le Cam, accepting his awardPast CEO of EURORDIS – Rare Diseases Europe, Yann Le Cam, accepting his award
Past CEO of EURORDIS Yann Le Cam (center) with host Peter Alexander and NORD CEO Pamela GavinPast CEO of EURORDIS Yann Le Cam (center) with host Peter Alexander and NORD CEO Pamela Gavin
Award recipients and patient presenters from Chiesi Global Rare Diseases on stage with host Peter AlexanderAward recipients and patient presenters from Chiesi Global Rare Diseases on stage with host Peter Alexander
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